List of things that you don't expect to come with your child when you're still pregnant and dreaming:

Walking frame (First Rifton Pacer, now the far more exciting bright yellow R82 Mustang!!)
Tripod walking stick
Specialist Trike (Possibly the only non breathing thing we would rescue from burning house)
Leg splints
Oversplint boots
Kneepads
Arm splint
Botox injections
Juni chair
Size Two Mountain Buggy age 5-9 (when folded almost too big for even my boot)
iPad with speech software (Think Stephen Hawkin with pictures)
Physiotherapists (let's hear it for the amazing Heather and Julia who have looked after him for nearly 5 years now)
Occupational Therapists
Speech therapist
Paediatric Consultant
Orthopaedic paediatric surgeon
Fantastic special school 
Specialist school transport (Jackie and Dermot are the best)
Disability Living Allowance applications
Motability Cars
Blue Badge (A blessing and a priviledge)
Ignorant Health Visitors
Statement of special educational needs
Home-school books
Referral forms, application forms, charity grant forms

But hey

Who cares. We've got this. So worth it.